Joining up with Lisa Leonard again this week for the Hello Monday blog prompt! I love this series and the bold inspiration behind beginning each week with crisp motivation and hope.
Hello to childhood and Sookie requesting to wear her swimsuit in the bath tub. I responded with, "Why not?"
Hello to a girl and her kitty.
Hello to being 31 years old and still getting excited about bacon and eggs in the morning. And coffee! Always coffee.
Hello to new ideas and fresh creative outlets. I'm grateful for the vast opportunities to express myself. Even if that sounds super corny.
Hello gummy bears driving toy cars. Her world is magnificient and her imagination is stellar beyond words.
Hello to the new routine of playing at the park for a few minute before school starts.
Hello to crying over a light up Frozen journal at Target. Because it was simply one of those moments were life, beautiful, crazy, miraculous life rushed in on you and you are overwhelmed with gratitude to be standing at Target on a Sunday night doing Christmas shopping.
Hello to my beautiful and brave friend Ashley Hackshaw aka Lil Blue Boo wearing her today is a miracle tee. She posted a poem along with this photo and it absolutely floored me. Goosebumps were rampant.
Hello to Christmas music being played nonstop around here. My favorites today consisted of the Sugarland creation, Gold And Green, and a classic that reminds me of my childhood, Alabama's Christmas. Thistle Hair The Christmas Bear? Oh it tugs on the heartstrings every single time.
15 December 2014
13 December 2014
Thirty years ago today I was diagnosed with Cystinosis. I was 16 months old. My parents were told by doctors that I would not live to see my 10th birthday.
Today I shipped out shirts from the shop I started to celebrate 20 years since my kidney transplant. Today I was a mom. Today I did laundry. Today I played zoo keeper to our one dog and two cats. Today I posted gLockets promotion holiday sales on our social media accounts. Today I went to lunch with my dad. Today I did dishes. Today I chased my girl around the house and patiently asked her to get dressed for the 11th time. Today I cleaned our house. Today I took heavy duty albeit very pretty pink and red heavy duty antibiotics to treat the nasty infection that resulted in a second root canal yesterday. Today I captured our odd defying girl jumping in puddles in her red rain boots.
Today I took deep breaths at Target during the onslaught of people caught up in the Christmas rush. Today I drove my new to me 2005 Touareg and thought about how thankful I am that Christmas came a little early and I won't be getting stranded on the side of the freeway again anytime soon because of my car breaking down on me. Today I watched our girl focus so intently on squeezing the frosting out onto her gingerbread house so carefully. Today I had a wild dance party in our kitchen. Today I helped our girl pack for an imaginary trip to Hawaii. Today I worked on a secret Christmas gift for Rory.
Today was never supposed to happen and yet it did.
There are so many misconceptions out there about Cystinosis. About bleak and incorrect assumptions that make my heart hurt. We can never predict what anyone's life will be. Even when they are erroneously grouped into the same trajectory of life because of the same shared faulty DNA. One thing that is incredible important to me is to change the way people think of Cystinosis. It is not a death sentence. It doesn't have to change anything. Except for perhaps the beauty you are open to see.
There is no doubt education is a powerful and transformational experience in our lives. Think about your happiest childhood memories, probably several of them occurred in the environment of elementary school. Think about the moments when you began to realize your own potential. The moments of your young adult life when you discovered an innovative idea that sparked something deep within yourself. A myriad of these milestones happen within the context of a learning environment.
The history of my own education is significant in the grand theme of my story. It has assisted me in overcoming so many obstacles, even when it was part of the detour on my own path. I went through my kidney transplant in elementary school. I only missed three weeks recovering before I went back because I was bound and determined not to let it slow me down. The doctors estimated I would need at least six weeks before I would be ready to return. Fast forward to junior high and high school, I faced many health obstacles because of side effects from the transplant and missed a lot of school. I knew I wanted to go to college someday and I kept pushing through the challenges. My passion to expand my own knowledge assisted me in many other facets of my life.
I have seen the power of education play out in my life and the lives of others. I feel that when you throw yourself into your own education, you better yourself by believing in something bigger and better. Because of this, I love that for every soft toy and children's book purchased from now until January 3rd, 2015, The IKEA Foundation is donating $1 to UNICEF and Save The Children. This goes for online sales as well! This project is solid proof that working together we can all make huge changes for the greater good.
I have learned so much about the tremendous strides IKEA has made in terms of providing better education to children in dire need. By giving them these often new opportunities, they are not only giving these kids motivation to reach higher in their own lives, but they change the course of their entire families as well. The IKEA Soft Toys For Education campaign started in 2003 and has enriched the lives of more than 11 million kids living in Europe, Africa, and Asia.
11 December 2014
On Tuesday, the happy tears came often. It was a family day of fun filled Christmas memories. I will never forget an ounce of it. I cherish the days when we can simply be together and the rest of the world fades into the background. These times are rare and much needed as the chaos of the holiday has us all hustling with gLockets orders and now this year, tee and tote orders. I'm grateful for the opportunity to navigate the balance these adventures require! The sight of Sookie watching with glee as Rory dressed up as Santa for a fun photo shoot? Priceless. Cue tears. I love the idea behind Fotofly Santa. Parents can dress up as Santa to prevent stranger anxiety. I knew Sookie would be fine with the real Santa, but a Daddy Santa added that extra bit of sentimental that I was craving. Downright brilliant. If you are in the Utah area I definitely recommend it!
Our girl giggling as she was petting reindeer? The sweetest. Her school Christmas program was that afternoon. She stole the show, of course. Complete with dance movements and knowing every single word of the four songs her class performed. The encore was This Is My Wish by Jordin Sparks and I could not hold the tears back. A group of 3, 4, and 5 year olds singing This is my wish, my wish for the world, that peace would find it's way to every boy and girl. This is the time, the time for harmony, let love be the song that everybody sings.
Making sure her childhood is filled with whimsy is oh so important to us. With everything we've been through to get here, every laugh out of her sweet mouth feels like a celebration. Every morning since our elf, Flower Ella arrived, she's up early ready to go on a treasure hunt for that silly creature. So far we have found Flower Ella sitting on a chair made of legos, bathing in a giant bowl of gummy butterflies and jelly beans, and going for a ride down the stairs in a roll of toilet paper. I want her to carry that spark with her every single day, and well into adulthood. To see that magic lives within all of us and when we are in tune with it and share it? That is how the really good stuff happens.
I've been looking back at this past year and thinking about how far I have come in my own personal journey...and how far I still have to go. The triumphs will fuel me to continue forward into 2015. Last year at this time I was nervous for a CT scan at a cancer speciality hospital here, and after the tough times of last fall, I simply wanted them to say everything looked normal. And it did. I've had that cancer scare so many times already, because of my exciting health adventures it is always something I'm more at risk for, but it doesn't get easier. I'm beyond grateful this year did not include a lymphoma diagnosis. How's that for incredible?!
This girl is healthy and happy! She's such a miracle and it makes my heart burst wide open.
09 December 2014
You're fantastic. You're doing your best. Your best will vary slightly from day to day depending on several factors. If you have a not so stellar day, dust yourself off. Try again tomorrow. Keep aiming for your shiniest.
You're stronger than your faults. And you're bigger than your obstacles. Your shortcomings are where your strength can truly showcase itself.
Yesterday is gone. That is okay. It is more than okay, it is actually in fact perfect, because you're in today. And today is where the magic happens.