Cystinosis Strong Challenge!

I have been so motivated by September's #cystinosisStrong challenge that my dear friend Jessica created. I'm so excited! I was inspired by news that largely due to the success of the ALS ice bucket challenge, they are now on the verge of a cure for ALS. How amazing is that?!

It would be such a dream come true for this challenge to go viral and for the same to happen for cystinosis.

Here is more about it, in her own words on the Facebook Event Page

There is still time to join the ‪#‎cystinosisStrong‬ challenge!! As a reminder, here are the steps:
1. Snap a picture representing strength and upload it with the hashtag #cystinosisStrong. (If you want to be entered in the weekly drawing, I have to SEE your photo! So if you aren't friends with me, you'll need to make the photo public or post it here - that way it will show up when I search by hashtag.)
3. Challenge a friend or two and help share awareness of muscle wasting complications of cystinosis!
Thank you for helping with this cause.




On the first day of this challenge, I shared the above photo, because no makeup and snuggles? Yes please!
At 32, I am ‪#‎cystinosisstrong‬ because I am a mother, a writer, a wife, a business owner, a blogger, a daughter, a friend, a crazy cat lady, an aunt, a human in motion, a soul chasing down dreams. Every day I get up and decide to push myself further, even if I don't feel like it.

Today? Today I am #cystinosisstrong because this month I am focusing on doing things outside of my comfort zone. Yesterday was a no good very bad day, but today is a fresh start. I'm ready to move forward and shake off frustrations. How gorgeous is this view from my walk this morning?



Come join the #cystinosisstrong challenge on Facebook! There are nine more days to share your photos!

23 comments :

  1. Replies
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      Saya IBU WINDA ingin berbagi cerita kepada anda semua bahwa saya yg dulunya cuma seorang TKW di SINGAPURA jadi pembantu rumah tangga yg gajinya tidak mencukupi keluarga di kampun,jadi TKW itu sangat menderita dan di suatu hari saya duduk2 buka internet dan tidak di sengaja saya melihat komentar orang tentan AKI SOLEH dan katanya bisa membantu orang untuk memberikan nomor yg betul betul tembus dan kebetulan juga saya sering pasan nomor di SINGAPURA,akhirnya saya coba untuk menhubungi AKI SOLEH dan ALHAMDULILLAH beliau mau membantu saya untuk memberikan nomor,dan nomor yg diberikan AKI SOLEH meman betul2 terbukti tembus dan saya sangat bersyukur berkat bantuan AKI SOLEH kini saya bisa pulang ke INDONESIA untuk buka usaha sendiri,,munkin saya tidak bisa membalas budi baik AKI SOLEH sekali lagi makasih yaa AKI dan bagi teman2 yg menjadi TKW atau TKI seperti saya,bila butuh bantuan hubungi saja AKI SOLEH DI 082-313-336-747- insya ALLAH beliau akan membantu anda.Ini benar benar kisah nyata dari saya seorang TKW
      trimah kasih banyak atas bantuang nomor togel nya AKI wassalam.


      KLIK DISINI BOCORAN TOGEL HARI INI





















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